Arts student Josy Chow Pui-shan, 23, wants government to look into new but costly medication for spinal muscular atrophy patients

9 October 2017 (Monday)

SCMP Health & Environment

Josy Chow Pui-shan, who was born with spinal muscular atrophy (SMA), a genetic disorder that gradually destroys physical abilities such as walking and breathing, urged the government to introduce nusinersen, marketed as Spinraza, the first approved drug for SMA by the US Food and Drug Administration.

She will submit the proposal in a petition on Sunday staged by SMA patients and families outside the office of the chief executive in Admiralty.

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